What does it look like when the system actually works for you — and it's still overwhelming?
Sasha is a non-binary business owner, parent, and self-described science nerd living in San Francisco. When a routine mammogram missed their cancer entirely, it took a chance biopsy to find it. The diagnosis? Invasive lobular carcinoma — HER2 positive. A combination so rare it affects just 0.4% of all breast cancer patients. There's only one specialist in the country who studies it.
Sasha came into this with good insurance, a cancer center down the street, a network of people who could read the research, and a 13-year-old who gave them a green mohawk before chemo. By every measure, Sasha had every advantage the system offers.
And it was still $55,000 per session. Still confusing. Still lonely in ways nobody tells you about.
This episode is funny, sharp, and unflinching — about chemo myths, financial toxicity, the social model of disability, and what it really means to ask for help.
Full episode of Changed by Cancer is coming June 3. 🎙️ Follow now and never miss a story → changedbycancer.com
🎧 Available on Apple Podcasts, Spotify, YouTube & Amazon Music
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